Olinda 25 May 2016

Over the years since we started this blog David has been the one who did the various posts. In the past few weeks David has weakened a lot and finds most tasks quite difficult and he is extremely tired. So I have taken over the role of keeping all and sundry informed about happenings here. David has been very fortunate in that his legs have remained quite strong for the past 3 and half years....however the MND has finally struck him in the legs and he can now barely stand. TOday we dragged out the hoist as we have reached  the stage of needing it to move him from bed to wheelchair and for toileting. The other significant change is in his breathing....he is finding this more difficult and he has now started requesting to use the Non Invasive Ventilator (NIV) during the day, whereas before he only used this machine at night. It would seem that his diaphragm is becoming weaker and it is this muscle that really determines how long most MND sufferers live. We cannot tell how long David will live for....however statistically speaking he has lived with MND longer than most do. We are receiving excellent support from our Health system and we are so grateful that we live in Oz....if we lived in that land of the brave and free we would be destitute by now. 

During the time he has had this wretched disease we have had 4 children added to the family.. And this has been a real source of comfort for me as I know I will soon lose my loving partner.

Ross